Fogghorn wrote:
Av-merican wrote:
Very sorry to hear that, Kyle. I know there's no cure but there are treatments. And thankfully you don't live in a country like mine where private insurance will try to scam you at every turn.
I know model Christy Turlington was diagnosed when she was 31. She's nearing 50 now and near as I can tell has lived with emphysema and doing well. Obviously her wealth makes getting whatever treatments are available super-easy for her, but surely many are still available for people like us.
Christy was also diagnosed at stage 1 which makes a big difference. I was at least stage 2 two years ago, noticed on hikes when I was taking double the time to do what I had been a few years prior. Just thought I was dealing with a flu bug or something and ignored it. Now that I know the symptoms to have looked for
. Probably at stage 3 now. Anyways I have specialists to see and tests to do and lot of exercises and changes to make. Hoping for 4 years to help my wife through her Masters but I could have as much as 10.
Still perplexed how to tell my parents, this is going to suck.
Laura faced this when she was diagnosed with stage iv breast cancer.
She thought that 3 - 5 years was what she would have.
That was 5 years ago and her latest scan came back clean.
What Craig said about exceptions - that's a real thing.
We've met a number of people with terrible diagnosis living longer than they figured they would of.
Do what you need to do.
This is about you now.
I feel really sad hearing this. I remember Laura's mother's grief. She couldn't function for a while.
I'll tell you this though: A lot of people with critical illnesses end up feeling responsible for looking after other people - as though it's somehow their fault.
You were dealt a shitty hand. It's shit bad luck. And as tough as it is to not be the sick person giving care for others, a big part of the grace of your situation will be looking after yourself.
Do what you need to do.
Take care.
I'm sad hearing this news. really sad.